Role: Research Assistant
Bio: Freya has worked with autistic and mental health Public and Patient Involvement (PPI) for many years, both as a participant and, since 2019, as a research assistant at UCL. Freya has a passion for ensuring PPI is meaningful and evaluated for improvement.
Research Summary: Freya has worked on NIHR funded systematic reviews in autism since 2019. Prior to this Freya was part of the Wellcome Trust-funded ‘Café Connect’ project, which engaged the public throughout all phases of the research cycle. Freya completed their BSc at the University of Nottingham, where they also worked on a project studying individual stories on ‘steps to recovery from self-harm and eating disorders.’
Current research and activities: Freya is currently the research assistant on a systematic review of RCTs with autistic participants involving language and communication interventions.
List of relevant web presences:
Recent Publications:
Elise, F. Slonims, V. ‘Anxiety and Stress: What is a reasonable accommodation?’ Professionals Conference, National Autistic Society, February 2020
Elise, F. Slonims, V., White, P., Simonoff, E. ‘Grounded or Isolated? The practice and experience of researchers, patients and carers in collaborative research.’ Autisme Europe 2019, September 2019 [Oral Presentation]
Elise, F. ‘Work Arounds’: A presentation on Augmented and Alternative Communication and other ‘work arounds’ as an autistic adult.’ How I communicate: A conference exploring the diversity of autistic communication, Kings College London, July 2019
Elise, F. Slonims, V., White, P., Simonoff, E. ‘IAMHEALTH: Practice and experience of Patient Participation Involvement.’ Discover, Autistica, June 2019 [Oral Presentation]
Harper, G., Smith, E., Mandy, W., Tchanturia, K., Nielsen, E., Cumming-Webb F. (2019) Autistica Action Briefing: Eating Disorders [PDF file]. Retrieved from http://www.autistica.org.uk/downloads/files/Autistica-Action-Briefing-Eating-Disorders.pdf